The Canadian Orphan Drug Act Explained

Health

In the United States, the median price for an

Paul Melmeyer, Director of Federal Policy, National Organization for Rare Disorders Cartier Esham, Executive Vice President for ...

... policies related to rare disease and orphan drug development and then Paul gave a great

Brad Crittendale, president of the

We talked with Durhane Wong-Rieger on what CORD is doing to get

Have you ever wondered how

Key opinion leaders provide a

Orphan Drugs

Emil Kakkis, MD, President and Founder of Ultragenyx Pharmaceutical Inc., explains that while the

Rare Disease Day: A Look at 40 Years of the

Last week, we argued that the benefits of the

Key issues: • Rationale and impact of

Robert Derham, Founder of CheckOrphan discusses the

Rare Disease Legislation: A Historical Primer |

... Foundation as she talked about the advances made in the rare disease community since the passing of the

Experts will take a deep dive into the incentives in the

The

Over 6000 different rare diseases identified to date affect 3.5% – 5.9% of the worldwide population. They have a big impact not ...

Myths and realities of the