Media Summary: An overview of gene therapy by experts from Johns Hopkins Medicine and Kennedy Krieger Institute. The panel will cover core ... In this interview, we meet Sarah Lansing, a parent and patient advocate in the fight against hepatoblastoma. In August 2021, her ... Raising Youth Voices is a new initiative by

Rare Disease Day 2026 Webinar - Detailed Analysis & Overview

An overview of gene therapy by experts from Johns Hopkins Medicine and Kennedy Krieger Institute. The panel will cover core ... In this interview, we meet Sarah Lansing, a parent and patient advocate in the fight against hepatoblastoma. In August 2021, her ... Raising Youth Voices is a new initiative by Please donate at: or go to for other ways to . People around ... Defeat Duchenne Canada hosted its third EMPOWER Advocacy Today, on the 28th of February, we recognise

Dorottya Laczko presents at this month's community gathering to share her latest research findings, followed by a Q&A session ...

Photo Gallery

Rare Disease Day 2026 Webinar
ERIN Rare Disease Day 2026 Webinar on Platelet Disorders
2026 NUCDF special Rare Disease Day event, “Patient Voices: UCD Lived Experiences,”
FDA’s Rare Disease Day 2026 – An Event for Patients
Rare Disease Day 2026 | Gene Therapy in Practice
Rare Disease Day February 2026
Rare Disease Day 2026 Symposium w/ Rep. Anderson
Hepatoblastoma Webinar in Honor of Rare Disease Day 2026
Rare Disease Day 2026
Countdown to Rare Disease Day 2026!
Raising Youth Voices 2026
Rare Disease Day 2026
View Detailed Profile
Rare Disease Day 2026 Webinar

Rare Disease Day 2026 Webinar

Good afternoon and welcome to

ERIN Rare Disease Day 2026 Webinar on Platelet Disorders

ERIN Rare Disease Day 2026 Webinar on Platelet Disorders

Held on 27 February

2026 NUCDF special Rare Disease Day event, “Patient Voices: UCD Lived Experiences,”

2026 NUCDF special Rare Disease Day event, “Patient Voices: UCD Lived Experiences,”

For

FDA’s Rare Disease Day 2026 – An Event for Patients

FDA’s Rare Disease Day 2026 – An Event for Patients

FDA will host

Rare Disease Day 2026 | Gene Therapy in Practice

Rare Disease Day 2026 | Gene Therapy in Practice

An overview of gene therapy by experts from Johns Hopkins Medicine and Kennedy Krieger Institute. The panel will cover core ...

Rare Disease Day February 2026

Rare Disease Day February 2026

And Sherry and I both have the same

Rare Disease Day 2026 Symposium w/ Rep. Anderson

Rare Disease Day 2026 Symposium w/ Rep. Anderson

Rare Disease Day 2026

Hepatoblastoma Webinar in Honor of Rare Disease Day 2026

Hepatoblastoma Webinar in Honor of Rare Disease Day 2026

In this interview, we meet Sarah Lansing, a parent and patient advocate in the fight against hepatoblastoma. In August 2021, her ...

Rare Disease Day 2026

Rare Disease Day 2026

Rare Disease Day 2026

Countdown to Rare Disease Day 2026!

Countdown to Rare Disease Day 2026!

The countdown to

Raising Youth Voices 2026

Raising Youth Voices 2026

Raising Youth Voices is a new initiative by

Rare Disease Day 2026

Rare Disease Day 2026

Special Guests Anne Gridley.

Rare Disease Day Webinar 2026: Turning Precision Medicine Into Reality

Rare Disease Day Webinar 2026: Turning Precision Medicine Into Reality

In this

Rare Disease Day 2026 - Live event

Rare Disease Day 2026 - Live event

Please donate at: http://paypal.me/fmfandaid or go to https://www.fmfandaid.org/donate for other ways to #donate. People around ...

Rare Disease Day 2026 | EMPOWER Advocacy Webinar – Time to Take Action

Rare Disease Day 2026 | EMPOWER Advocacy Webinar – Time to Take Action

Defeat Duchenne Canada hosted its third EMPOWER Advocacy

Rare disease day 2026

Rare disease day 2026

Today, on the 28th of February, we recognise

Rare Disease Day 2026: Interview with Dr. Nick Bass

Rare Disease Day 2026: Interview with Dr. Nick Bass

Rare Disease Day

2026 Rare Disease Day Virtual Community Gathering

2026 Rare Disease Day Virtual Community Gathering

Dorottya Laczko presents at this month's community gathering to share her latest research findings, followed by a Q&A session ...

11th Rare Disease Day Event: Opening Remarks

11th Rare Disease Day Event: Opening Remarks

11th